Story time
- Katie Tolbert
- Dec 29, 2020
- 2 min read
Some my journey FND has been long and hard full of ups and downs.
Living with multiple disability is not to medical issues can be very challenging very draining we have to make even small tasks achievements an try to be proud of what we can do even if they seem like simple tasks cause some days thats what counts an thats all we can do.
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Wow what a life journey this has been 2 yrs ago my symptoms got worse, this journey has been full of ups and downs.
Its been hard not having a diagnosis but when I was diagnosed with FND it didn't seem like much of a improve ment cause there still isn't alot know or alot of treatment options. Now we know truly what an achievement it was following the FND diagnosis
These days getting through the day can be an achievement
What you see in this picture hides so much, getting through highschool an starting to work part time was a massive achievement an I didn't think it was possible last year with how things were .
I’ve learned so much living with alot of different medical conditions an being the oldest kid an try to still help an be apart of the family with my siblings .
Autism
PBD
NES
AMPS
FND and NEADs
Tourettese
And more
Learning to manage life long conditions with techniques and habits is a must to gain acceptance.
FND is When your brain signals are wired wrong and you get stroke, MS , Parkinson’s, epilepsy, fibro and
FND patients can experience a wide range and combination of symptoms that are physical, sensory and/or cognitive. The most common include:
Motor dysfunction
• Functional limb weakness/paralysis
• Functional movement disorders; including tremor, spasms (dystonia), jerky movements (myoclonus) and problems walking (gait disorder)
• Functional speech symptoms; including whispering speech (dysphonia), slurred or stuttering speech
Sensory dysfunction
• Functional sensory disturbance includes altered sensation; e.g. numbness, tingling or pain in the face, torso or limbs. This often occurs on one side of the body
• Functional visual symptoms; including loss of vision or double vision
Episodes of altered awareness
• Dissociative (non-epileptic) seizures, blackouts and faints: these symptoms can overlap and can look like epileptic seizures or faints (syncope)
Symptoms often fluctuate and may vary from day to day or be present all the time. Some patients with FND may experience substantial or even complete remission followed by sudden relapses of symptoms.
Other physical and psychological symptoms are commonly experienced by patients with FND but may not be present. These include: chronic pains, fatigue, sleep problems, memory symptoms, bowel and bladder symptoms, anxiety and depression.
signs symptoms randomly thrown at you daily hourly which making planning a day hard an not know how you'll go from doing okay to not at anytime . Throw in the struggles and cognition issues leading to sequencing and understanding complex information and understanding my medical it has been a challenge.
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