Part of my story

Some my journey FND has been long and hard full of ups and downs.

Living with multiple disability is challenging, not all medical issues can be very challenging but alot are, most are very draining. It to make even small tasks achievements an try to be proud of what we can do even if they seem like simple tasks cause some days thats they are is what counts an thats all we can do we just have to except that those days an try to do better when we can. Fatigue is something alot of us with disabilities live with.

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Wow what my life journey this has been lets start with 2 yrs ago my symptoms got worse, this journey has been full of ups and downs.

Its been hard not having a diagnosis but when I was diagnosed with FND it didn't seem like much of a improve ment cause there still isn't alot know or alot of treatment options. Now we know truly what an achievement it was following the FND diagnosis

These days getting through a day can be an achievement

What you see in this picture hides so much, getting through highschool an starting to work part time was a massive achievement an I didn't think it was possible last year with how things were . They still are really hard to maintain but im doing the best with what I got .

Walking was a big thing I lost when I started this part of my journey went from walking some an ok ish to not at all back to kinda ok an not the Rollercoaster of this is so hard to deal with .

Living in a constant state of pain its horrible an living with it were it worsens it hard too. Because there is never a day im not in pain just days were I cant more cause I'm in so much. AMPS & Fibro make living life an wanting to do fun activities really hard but its also made me strong to have a high but yet sensitive pain tolerance. I might not be able to walk alot or do fun sports or activities but when I can I make the best of it tho I pay for it later. Fainting was also an big thing that came with this from a few minutes to hours its scary but not a big deal at the same time cause I'm still alive just in a deep sleep.

Having learning disabilities also has made school hard an try to do fuller education a challenge and not may poeple understand that still but there are now lots of ways to help an find different things to try audiobooks are my favorite way to read so that I can understand the book the best . Writing an spelling are hard but thanks to grammerly an auto type it has made that easier and more of a possibility for me to do.

PNES / NEAD

Having full body spasms like seizures is no fun an really painful an trying the fact is they still happen while I sleep so its not like I can get away from them. They seem scary but there not they are just hard to manage an there's Really nothing to do but wait them out they last for me anywhere from a few minutes to a couple hours. Spasms of muscles an certain part of my body in my muscles are exhausting but they also come and go they are very similar in aspects to what it looks like when I have a episodes they usually come with it.

TOURETTESE

I had my tourettese get worse last year an was diagnosed.

I on some meds that help manage it to some level an im able to talk almost a whole sentence or too before I tic which is nice it sucks that they can be so bad that it pops my neck or wips my head to one side or my arms up but they could be worse so thats good there not. Be doing OT to help identify triggers an what makes them worse to try to avoid them I still tic an have tic attacks quit often but not super severe like they use to be .

FAMILY LIFE

I’ve learned so much living with alot of different medical conditions an being the oldest kid an try to still help an be apart of the family with my siblings , it might not look normal but its are normal and that's how it is with this . Ik I cant do as much as I want or would like be able to do . It's made my siblings more aware of what its like to not be normal an still love an help others that are different they learn to help care an take care of things ❤ loving others that are different is something I wish more of the world 🌎 understands.

LIST OF MY ILLNESSES

Autism

PBD

PNES

AMPS

FND / FMD

EDS

NEADs

Tourettese

Dyslexia/dysgraphya

SPD

AND A FEW MORE

Learning to manage life long conditions with techniques and habits is a must to gain acceptance.

FND is When your brain signals are wired wrong and you get stroke, MS , Parkinson’s, epilepsy, fibro , EDS an others .

FND patients can experience a wide range and combination of symptoms that are physical, sensory and/or cognitive. The most common include:

Motor dysfunction

• Functional limb weakness/paralysis

• Functional movement disorders; including tremor, spasms (dystonia), jerky movements (myoclonus) and problems walking (gait disorder)

• Functional speech symptoms; including whispering speech (dysphonia), slurred or stuttering speech

Sensory dysfunction

• Functional sensory disturbance includes altered sensation; e.g. numbness, tingling or pain in the face, torso or limbs. This often occurs on one side of the body

• Functional visual symptoms; including loss of vision or double vision

Episodes of altered awareness

• Dissociative (non-epileptic) seizures, blackouts and faints: these symptoms can overlap and can look like epileptic seizures or faints (syncope)

signs symptoms randomly thrown at you daily hourly which making planning a day hard an not know how you'll go from doing okay to not at anytime . Throw in the struggles and cognition issues leading to sequencing and understanding complex information and understanding my medical it has been a challenge.

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