FND brain

Living with MY BRAIN 🧠

January 1, 2020

Ok so I've been blogging about FND for a little bit and when I decided to do this blog about living with Neurological Disorder it was hard cause i didn't know what all to say. Cause there alot that many don't see. My daily life is a roller coaster. You never know which side of the coin my days will land on and this past week has been a pain an a coaster. Actually the last several years have been. 

Here is my story apart of my story.....

All my life there have been times where my body would hurt for no reason my leg would give out or something else would happen. There be swelling for no reason and there would be times that my muscles would spasm for anywhere from seconds to hours again for no reason. Well at least that is what I thought, no reason for this or for that.

 I have always hated taking pills after being prone to medical issues from a young age and them never helping. You see at 7, I started to have a lot of issues with my legs. But no one believes me at first. They thought I was making it up, doing it for attention and that just what hey thought for years with different doctor an time and times again just like before .

 In 2018-19 I had my first non epileptic seizure. And a few passing out episodes In fact I had several and my mom rushed me to the hospital they said I was okay and monitored me then sent me home , i saw several neurologists and they spent an months trying to figure out what was going on , while there with my Mom/Dad and I, during which he went over my history and observed me. on April 22 2019

I had woke up like any other day an was talking with my mom an I got up to walk to the kitchen an lost all feeling an moment from the waist down . so at 9 am yesterday morning I suddenly lost all feeling and use of my legs everything from the hips down My dad took me to the er ( it was a disaster after 7 hrs and they transferred her to the children's hospital) ....it was at 4 am in the morning on the 23rd. and admitted me an they assigned me a team of docs that have been amazing they are working together for more test , ideas ect ... so far nothing has given us any anserws and there has been no change or improvement in my condition yet. . . They did say that they would be keeping her untill they figure out what is causing the problem and come up with a plan to fix what they find ..... my room is nice and has a good view , pt gave me a wheelchair to help her get outta bed alittle. this gotta worse from there I started having tremors an full body spasms an was really tired. dearing the fully body spasms sometimes I could see or my hearing would lessen. they kept me for a week an at the end they had finally diagnosed me with FND/FMD. I spent awhile in the wheelchair not being able to feel then learning how to walk again then I've been in an out since. the tremors an spasms are less then they were last year. I still have tremors an spasms, my legs still buckle an I lose feeling or movement. I've also now got the where my chest muscle spasms. but every Day is different.

when I was younger they couldn't explain why I could feel my leg at times or why it gave out an other stuff. but it's nice to finally have a diagnoses.

He changed my life forever...we had an answer as to why everything had been happening. Why all medical tests came back as normal and he finally put an end to that ugly family joke. I never faked any of it and he validated that in a few words. "She has a condition called FUNCTIONAL NEUROLOGICAL DISORDER and a few others." 

My dad just looked at me and then to him and took it all in. After we left they told me that she now understood and did the best they can to help me. She goes ok so now we have a name let's see what we can do about it. You see my mom when I was younger would tell me ok "just keep walking, as long as you can move you can get out of it." This has stuck with me throughout my life and I often think about that when my symptoms act up. 

Functional Neurological Disorder or FND has so many symptoms that it is hard to diagnose. Often it is miss diagnosed and it is considered we are unicorns but that is for another post. 

Side note:  pseudo seizures is also know as non epileptic seizures.